A Pacific Island Parent's Perspective
Presenters: Karolin Tutuvaha & Galumaninoa Tasi Perez
For the last 19 years I have been a mother, friend, confidant and pillar to a son with an intellectual disability. Our journey together has been one of endurance, courage and understanding of not only how his existence has impacted on my world view, but also how my son interprets and participates in the world around him.
I have also worked alongside Pacific people with special needs for the last
13 years. It is through my experience as both a mother and professional that
I have developed the following presentation.
Areas covered in this workshop were;
a. Knowledge of the term 'Disability'
b.. Communication - Who defines this?
c.. Sexuality Issues
d.. Family Impact
e.. Cultural Context
f.. Strategies Implemented - What's Worked?
The intent of this presentation is to raise awareness to all in the community of the above issues. As a Pacific mother and professional currently in the field of intellectual disability, I feel there is an enormous need to increase the voice of the parent who at times represents as the only voice for their family member. It is just as important for the person with an intellectual disability to participate in the process of defining support that is meaningful for them in the home and out in the wider community.
The cultural context is a relevant aspect to explore as it determines how the family perceives and interacts with their family member. Attention to the cultural environment in which a family exists gives the worker insight on how effective practice can be developed within a service.
It is through education that we can understand the context in which our special people live their lives, and from understanding we can then begin to determine how we deliver support appropriately. |
